Jason update
I'm too busy/lazy to clean this up, but ya'll'll get the point.
That's right ya'll'll. You-all-will... Hmmm.
When Justin gets a chance, he can correct any inaccuracies in this e-mail. I'm giving it my best shot, but I didn't take any notes except for the IV drug name, which Justin was spelling by memory.
Our grandson, Jason, is in ICU w/ an enlarged heart. They currently have him on Digoxin to strengthen his heart (it's not beating properly), Lasix to get rid of fluid around the heart, Dobutamine (sp?) (IV), and will be putting him on a Beta Blocker soon.
Jason vomited enough Sun & Mon to dehydrate himself, so Justin & Bonnie took him to the doctor Tues. They immediately sent him on to the hospital. In fairly short order, they did an EKG and an electro-cardiogram and discovered that his heart was enlarged and not beating properly (Justin described it as a galloping sound; i.e. 3 sounds to the beats instead of two). They will be doing some more tests today including repeating at least one of the above. They say there is an equal chance of one of three different possibilities -- 1) it's viral, which would mean it's temporary, 2) it's hereditary, but can be controlled w/ medication, 3) it will require a heart transplant.
Don't spread details from this too much, you might have to go correct half of them. :)
Needless to say, we're a bit on pins and needles, hoping and praying for the best. Hoping many others are, too.
Thanks for being there for us.
Ann
Corrections:
Okay, we took Jason to the hospital to hydrate and nourish him. They did an abdominal x-ray as part of a routine check they always do. That showed the enlarged heart, so they did a zoomed in chest x-ray. That confirmed the enlarged heart, so they did an echo cardiogram and an EKG.
The drug stuff is basically correct. So, I’ll leave it be.
The causes and outcomes aren’t linked as suggested in paragraph 3.
It could be caused by infection (bacterial or viral). It could be genetic. It could syndromic. It could be for some reason they don’t know.
Independantly, the outcomes have about equal likelihood and are:
- medication gets him to a stable point where it is hard to tell he ever had a problem
- same as option one, but he has to continue medication to keep in under control
- medication does not control it and he needs a heart transplant.
The latest news is that he got his first real nap since going in and has even begun to smile again … upon occasion. We brought him some Baby Einstein and Veggie Tales DVDs to give him some familiar background noise, and he seems to be appreciating that. He is able to eat without throwing up. And he’s on a pretty good feed. They’ve dropped in dextrose down to 5mL/hour. I believe he’s on a 10% solution.
All prayers are appreciated.
-Justin
That's right ya'll'll. You-all-will... Hmmm.
When Justin gets a chance, he can correct any inaccuracies in this e-mail. I'm giving it my best shot, but I didn't take any notes except for the IV drug name, which Justin was spelling by memory.
Our grandson, Jason, is in ICU w/ an enlarged heart. They currently have him on Digoxin to strengthen his heart (it's not beating properly), Lasix to get rid of fluid around the heart, Dobutamine (sp?) (IV), and will be putting him on a Beta Blocker soon.
Jason vomited enough Sun & Mon to dehydrate himself, so Justin & Bonnie took him to the doctor Tues. They immediately sent him on to the hospital. In fairly short order, they did an EKG and an electro-cardiogram and discovered that his heart was enlarged and not beating properly (Justin described it as a galloping sound; i.e. 3 sounds to the beats instead of two). They will be doing some more tests today including repeating at least one of the above. They say there is an equal chance of one of three different possibilities -- 1) it's viral, which would mean it's temporary, 2) it's hereditary, but can be controlled w/ medication, 3) it will require a heart transplant.
Don't spread details from this too much, you might have to go correct half of them. :)
Needless to say, we're a bit on pins and needles, hoping and praying for the best. Hoping many others are, too.
Thanks for being there for us.
Ann
Corrections:
Okay, we took Jason to the hospital to hydrate and nourish him. They did an abdominal x-ray as part of a routine check they always do. That showed the enlarged heart, so they did a zoomed in chest x-ray. That confirmed the enlarged heart, so they did an echo cardiogram and an EKG.
The drug stuff is basically correct. So, I’ll leave it be.
The causes and outcomes aren’t linked as suggested in paragraph 3.
It could be caused by infection (bacterial or viral). It could be genetic. It could syndromic. It could be for some reason they don’t know.
Independantly, the outcomes have about equal likelihood and are:
- medication gets him to a stable point where it is hard to tell he ever had a problem
- same as option one, but he has to continue medication to keep in under control
- medication does not control it and he needs a heart transplant.
The latest news is that he got his first real nap since going in and has even begun to smile again … upon occasion. We brought him some Baby Einstein and Veggie Tales DVDs to give him some familiar background noise, and he seems to be appreciating that. He is able to eat without throwing up. And he’s on a pretty good feed. They’ve dropped in dextrose down to 5mL/hour. I believe he’s on a 10% solution.
All prayers are appreciated.
-Justin
posted by Naffel at 12:54 PM
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